Keywords
cancer care
support services
phenomenological hermeneutics in cancer care
post-secondary programming for service providers
self-compassion
workplace support
How to Cite
Abstract
Working and providing cancer support services is both challenging and rewarding, yet the lived experiences of the personnel providing such services remain overlooked. It is vital to address the experiences of service providers to better understand the nature of their work and how it may impact their well-being. This paper explores the lived experiences of cancer support service providers, focusing on how they conceptualize and practice self-compassion in their workplace. A qualitative approach centred on phenomenological hermeneutics was utilized to collect in-depth interview data from service providers working in cancer support centres across southwestern Ontario, Canada. The research team used descriptive and narrative analysis to analyze the interview data and produced the following four themes: 1) acknowledging personal limits as a form of self-compassion; 2) organizational support; 3) emotional environment; and 4) prioritized self-care. Recommendations include more comprehensive support systems for service providers, especially if they may be experiencing secondary trauma or compassion fatigue. The findings gleaned from the service providers contribute valuable considerations for both the cancer care workplace and post-secondary institutions. While the findings provide real-life examples of effective support for service providers in the workplace, they also provide important considerations for post-secondary programming that include strategies for balancing empathetic service delivery with exercising self-compassion.
References
Alshaabani, A., Naz, F., Magda, R., & Rudnák, I. (2021). Impact of perceived organizational support on OCB in the time of Covid-19 pandemic in Hungary: Employee engagement and affective commitment as mediators. Sustainability (Switzerland), 13(14). https://doi.org/10.3390/su13147800
Anderson, T. M., Farrell, M. M., Moss, G., Gupta, M., Mooney, S., Daunov, K., Savernick, M., Frandsen, J., Verrona, K., Pecoraro, A., Mance, C., Garcia, J., & Lee, R. T. (2022). The perspectives of oncology healthcare providers on the role of palliative care in a comprehensive cancer center. BMC Palliative Care, 21(1), 148-155. https://doi.org/10.1186/s12904-022-01039-7
Berardini, Y., Chalmers, H., & Ramey, H. (2021). Unfolding what self-compassion means in young carers’ lives. Child & Adolescent Social Work Journal, 38(5), 533–545. https://doi.org/10.1007/s10560-021-00791-8
Bender, J. L., Babinski, S., Wong, G., Tricco, A. C., Englesakis, M., Cyr, A. B., Potts, H., Perski, O., Esplen, M. J., Young, C., Wassersug, R., Forster, V., Papadakos, J., Soobiah, C., Fox, C., Gothard-Huang, A., & Witteman, H. (2021). Establishing best practices in cancer online support groups: Protocol for a realist review. BMJ Open 11(11) e053916. https://doi.org/10.1136/bmjopen-2021-053916
Côté, K., Lauzier, M., & Stinglhamber, F. (2021). The relationship between presenteeism and job satisfaction: A mediated moderation model using work engagement and perceived organizational support. European Management Journal, 39(2), 270–278.
Creswell, J. W., & Creswell, J. D. (2022). Research design: Qualitative, quantitative, and mixed methods approaches. SAGE.
Edmonds, C., Lockwood, G. M., Bezjak, A., & Nyhof-Young, J. (2012). Alleviating emotional exhaustion in oncology nurses: An evaluation of Wellspring’s “care for the professional caregiver program.” Journal of Cancer Education, 27(1), 27–36. https://doi.org/10.1007/s13187-011-0278-z
Eisenberger, R., Shanock, L. R., & Wen, X. (2019). Annual review of organizational psychology and organizational behavior perceived organizational support: Why caring about employees counts. Annual Review of Organizational Psychology and Organizational Behavior. 2020, 7, 101–125. https://doi.org/10.1146/annurev-orgpsych-012119
Gadamer, H. G. (2004). Truth and method (J. Weinsheimer & D. G. Marshall, Trans.), Continuum. (Original work published 1960).
Garcia, A. C. M., Ferreira, A. C. G., Silva, L. S. R., da Conceição, V. M., Nogueira, D. A., & Mills, J. (2022). Mindful self-care, self-compassion, and resilience among palliative care providers during the COVID-19 pandemic. Journal of Pain and Symptom Management, 64(1), 49–57. https://doi.org/10.1016/j.jpainsymman.2022.03.003
Guerrero, C., & Lackner, T. (2024). Understanding hope from the voices of service users and providers across Canada. Journal of Innovation in Polytechnic Education, 6(1), 6-18. https://doi.org/10.69520/jipe.v6i.150
Hermanto, N., & Zuroff, D. C. (2016). The social mentality theory of self-compassion and self-reassurance: The interactive effect of care-seeking and caregiving. The Journal of Social Psychology, 156(5), 523–535. https://doi.org/10.1080/00224545.2015.1135779
Knaak, S., Sandrelli, M., & Patten, S. (2021). How a shared humanity model can improve provider well-being and client care: An evaluation of Fraser Health’s Trauma and Resiliency Informed Practice (TRIP) training program. Healthcare Management Forum, 34(2), 87–92. https://doi.org/10.1177/0840470420970594
Mifsud, A., Pehlivan, M. J., Fam, P., O’Grady, M., van Steensel, A., Elder, E., Gilchrist, J., & Sherman, K. A. (2021). Feasibility and pilot study of a brief self-compassion intervention addressing body image distress in breast cancer survivors. Health Psychology and Behavioral Medicine, 9(1), 498–526. https://doi.org/10.1080/21642850.2021.1929236
Neff, K. D. (2003). Self-Compassion: an alternative conceptualization of a healthy attitude toward oneself. Self and Identity, 2(2), 85–101. https://doi.org/10.1080/15298860309032
Neff, K. D. (2003b). The development and validation of a scale to measure Self-Compassion. Self and Identity, 2(3), 223–250. https://doi.org/10.1080/15298860309027
Neff, K. D., Knox, M. C., Long, P., & Gregory, K. (2020). Caring for others without losing yourself: An adaptation of the Mindful Self‐Compassion Program for Healthcare Communities. Journal of Clinical Psychology, 76(9), 1543–1562. https://doi.org/10.1002/jclp.23007
Olver, I., Keefe, D., Herrstedt, J., Warr, D., Roila, F., & Ripamonti, C. I. (2020). Supportive care in cancer-a MASCC perspective. Support Care Cancer, 28, 3467–3475. https://doi.org/10.1007/s00520-020-05447-4/Published
Paterson, R. (2011). Can we mandate compassion? Hastings Center Report, 41(2), 20–23. https://doi.org/10.1353/hcr.2011.0036
Rutledge, R., & Robinson, L. (2009). Psychosocial oncology: Community-based organizations are critical partners in providing complete cancer care. Current Oncology, 16(2). https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2669232/pdf/co16-2-29.pdf
Saldaña, J. (2021). The coding manual for qualitative researchers (4th ed.). SAGE.
Salloum, A., Kondrat, D. C., Johnco, C., & Olson, K. R. (2015). The role of self-care on compassion satisfaction, burnout and secondary trauma among child welfare workers. Children and Youth Services Review, 49, 54–61. https://doi.org/10.1016/j.childyouth.2014.12.023
Sanchez-Reilly, S., Morrison, L. J., Carey, E., Bernacki, R., O’Neill, L., Kapo, J., Periyakoil, V. S., & Delima Thomas, J. (2013). Caring for oneself to care for others: Physicians and their self-care. Journal of Supportive Oncology, 11(2).
Savas, S., Etchegary, H., Stuckless, T., Whitten, C., Wiseman, J., Bishop, D., King, J., Cutting, J., & Peddle, D. (2022). Public interest group on cancer research: A successful patient–researcher partnership in Newfoundland and Labrador. Research Involvement and Engagement, 8(1). https://doi.org/10.1186/s40900-022-00380-8
Sinclair, S., Norris, J. M., McConnell, S., Chochinov, H. M., Hack, T. F., Hagen, N. A., McClement, S., & Bouchal, S. R. (2016). Compassion: A scoping review of the healthcare literature. BMC Palliative Care, 15(1). https://doi.org/10.1186/s12904-016-0080-0
Sinclair, S., McClement, S., Raffin-Bouchal, S., Hack, T. F., Hagen, N. A., McConnell, S., & Chochinov, H. M. (2016). Compassion in health care: An empirical model. Journal of Pain and Symptom Management, 51(2), 193–203. https://doi.org/10.1016/j.jpainsymman.2015.10.009
Sinclair, S., Hack, T. F., McClement, S., Raffin-Bouchal, S., Chochinov, H. M., & Hagen, N. A. (2020). Healthcare providers perspectives on compassion training: A grounded theory study. BMC Medical Education, 20(1). BioMed Central. https://doi.org/10.1186/s12909-020-02164-8
Singh, S., Farrelly, A., Chan, C., Nicholls, B., Nazeri-Rad, N., Bellicoso, D., Eisen, A., Falkson, C. B., Fox, C., Holloway, C., Kennedy, E., McLeod, R., Rothenberger, D., Trudeau, M., Shanafelt, T., & Bauman, G. (2021). Prevalence and workplace drivers of burnout in cancer care physicians in Ontario, Canada. JCO Oncology Practice, 18(1), e60–e71. https://doi.org/10.1200/OP
Tiirola, H., Poutanen, V. M., Vornanen, R., & Pylkkänen, L. (2021). Development of cancer support services for patients and their close ones from the Cancer Society of Finland’s perspective. International Journal of Qualitative Studies on Health and Well-being, 16(1). Taylor and Francis Ltd. https://doi.org/10.1080/17482631.2021.1915737
Van Manen, M. (2016). Phenomenology of practice: Meaning-giving methods in phenomenological research and writing (1st ed.). Routledge. https://doi.org/10.4324/9781315422657
White, S., Foster, R., Marks, J., Morshead, R., Goldsmith, L., Barlow, S., Sin, J., & Gillard, S. (2020). The effectiveness of one-to-one peer support in mental health services: a systematic review and meta-analysis. BMC Psychiatry, 20(1). https://doi.org/10.1186/s12888-020-02923-3
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